Tuesday, March 10, 2009

Oh How I Miss That Sweet Boy

I can't tell you how much I miss that boy. His smile could light up a room.

Everyday, several times a day we would have to flush his buddies(AKA Cental Line). This became part of our lives like brushing our teeth or changing our underware! It took some getting use to at first but eventually...

Jake insisted on doing the job all by himself. Can you imagine. I think he was 3 years old here, and look what the kid became a custom to. At home he was a party favorite. His friends, especially Emma would love for Jake to pull back on the syringe and fill it with blood. Everyone in the room would say EWHHHHHHH and Jake would just laugh. It was hilarious.

When we were inpatient, keeping the kids entertained was always a trick. They had a play room you could go into as long as you weren't running any fever. They had childlife specialist on hand for anything you needed. Jake wanted puzzles, paints, games, or movies whatever his fancy ,the childlife specialist was there to make it happen.

Of course, we never went anywhere without our IV pole. You would be surprised at how the kids could get along while attached to a pole. It's as if they had a third arm!!!!

We were always happy to see visitors. This is Ms. Cathy, she was a Jake follower and came to visit on a couple of occasions. She brought Jake a blue's clue board game. I bet we played that game 100 times. He loved it, as long as he won!!! I love this picture it is so typical of him.

Jake loved getting mail. It was a highlight of the day. Man we would tear into those packages and his face would just light up! People were so kind to us, we got tons of mail everyday from all over the world. It was awsome!

Does anyone recall a picture on Mo's blog of me that looks similar to this one??? I believe she made fun of me!!!! If not look back around christmas, it was during the marathon. I was sick and cold, hey Mel, what's your excuse!!!!!!

I have to give her props! When I was tried and thought I could not play one more game, in would walk Mel to spend the weekend or even sometimes the week with us. It was a win win situation. I got a break and Jake got his best friend!


I'll have to get Don to load more pictures on this computer. It's new and I only have my recent pictures on here. I don't know where these came from and was very surpised to see them. I just had to share. I'm not very computer literate, and can only do the things Don has taught me to do. My fault really, I don't want to learn. But after posting these, I want to find more. I hope you enjoyed this as much as I did. I know I'm not done with the house tour, just keep watching and they will come!!

42 comments:

Beth E. said...

What a blessing to see Jake's sweet face today! I miss him, too, and these pics of his smiling face were just what I needed. Thanks so much for sharing them and HIM with the rest of the world. He will forever hold a special place in my heart. :o)

I am lovin' the picture of Mo...or is it Mother Teresa? LOL

Blessings to you and your family...

tricia said...

Just precious...thank you so much for sharing.

dena said...

Staci,
Oh how that little boy can stir it up in this heart of mine:) What a sweet, sweet boy. I am sure you miss him so much.....he is a gem and will ALWAYS be remembered. I love the pic on the hospital bed with his leg crossed, like he was the king of the castle...LOL. Thanks for sharing.....it is a gentle reminder to appreciate all that is truly important in life:) Jake reminds me of that everyday (and Stanton and Emma Grace too.....those kids are sooooo special). Have a great day....and by the way......appropriate that people commenting on the video on Mo's blog today were talking about payback for Miss Ellie Sue......seems Ms Mo, or shall I say Mother Teresa, is getting hers today as well:) You go girl!!!!!!!!!!

Vicki said...

Hello stranger/friend,
I've been with you for a long time. Little Jake Owen's smile pulled me in. Thank you for sharing his pictures with us today. He is such a precious angel.

Marina said...

Oh my goodness what a blessing to see Jake today! He was hilarious. We miss him.

Love, Marina

Mindy said...

Seeing these pictures of your Jake made my day!!! I was always a follower. Thanks for sharing. I often think of you and wonder how you are doing.

charlene said...

Thank you so much for sharing the pictures of Jake. I love seeing that smiling little face.

Beverly said...

I was so surprised to see Jake when I opened your blog - what a sweet surprise! Thanks so much - I love seeing that boy's smile! Keep blogging Staci - I just love it! Thanks for the warm fuzzies from Jake.

Debbie Jean said...

What beautiful memories and pics of such a special young man and his family. Thanks for sharing that today. He will always be special in my heart.

God Bless~
Debbie Jean

Julie Dietz said...

Oh my goodness that brings back so many memories of days spent at St Jude. Westin still wants to push his flush on his port. He loves the port and thinks that is the reason that he has to get medicine and when it is gone he will be okay. He measures it everyday and says it is getting smaller......sweet but it makes me cry.

Love the pics!!
Julie

Julie Dietz said...

Oh my goodness that brings back so many memories of days spent at St Jude. Westin still wants to push his flush on his port. He loves the port and thinks that is the reason that he has to get medicine and when it is gone he will be okay. He measures it everyday and says it is getting smaller......sweet but it makes me cry.

Love the pics!!
Julie

Sandy said...

Oh Staci what such a joy to get to see the angel that bonded us all together. We(bloggers) can never thank you and Don enough for letting us share in your childs life. Jake touched my heart sooo much with his angelic smile and his battles. Jake will forever hold a special spot in my heart.

I love the pictures of Mo.

Mbeaty19 said...

Seeing these pictures gets me so teary eyed. Jake was such an amazing kid and I wish I could have met him in person. Thank you for sharing the pictures of Jake. While I could never forget him and the place i hold for him in my heart I can never get enough of seeing pictures of him I haven't seen before. Thank you for sharing him with all us followers as well as the rest of your incredible family.
AS fir the pictures of Mo and Jake - Thank you for the remind of their special bond. It is all so bittersweet but special!

Lindsay said...

It's the Jake Effect! I don't have to tell you how many people loved that boy? Even better is the number of people that NEVER had the blessing of meeting him in person but are changed forever because of his sweet sweet soul. So much purpose! Thanks, Staci for sharing!

Denise said...

Oh so lovely to see photos of Jake again! He will always have a special place in my heart. I have an adorable little scrapbook (thanks Mo!) that I keep in my night table drawer along with several Chemoangel items... they help keep my priorities in perspective.
Lots of hugs, Denise, xoxo

Carrie said...

Oh Staci, thank you so much for sharing these wonderful pictures and memories of Jake. I was just over at the caringbridge site today to see if there was anything new posted and to see those beautiful eyes and smile. While I was there the thought crossed my mind that you haven't done a post since he entered heaven's gates. Thank you so much for proving me wrong.
I also want you to know that Jake and his family remains in my thoughts and prayers every day. What an awesome feeling and warmth he continues to bring to my heart.

Dannon said...

I too have been a Jake follower for quite some time. I don't even remember how I came across his site, but followed him the last year of his fight. I was drawn to your family and that crazy sister of yours! Then of course have followed both of you on your blogs. My husband even caught the Jake-bug and we made our first trip ever to Memphis this past December and he ran the half-marathon all the while thinking of your little guy! Thanks for sharing him with us and for the post today.....loved it! Dannon

kimybeee said...

I loved this post and was so pleasantly surprised. I actually looked up to see if I had hit Mo's page again. It definetly made me smile seeing pictures of Jake again.

I was thinking just today that I used to read so many caringbridge pages everyday. Of all the pages I followed, almost every kid has moved on to their heavenly home. I have moved onto reading blogs of a lot of the parents that moved past the cancer updates to everyday living stuff.

Thanks for the trip down memory lane - I look forward to more surprises!!

kimybeee

p.s. Mo looks a lot different back then than she does now! Good job Mo!!!!!

Renee said...

What a pleasant surprise to open up your blog and see that precious face! Thanks for making me smile first thing this morning.

Johnson Party of seven! said...

I don't think you ever need to worry about anyone forgetting that boy!!! He's one of a kind!!! I think about Jake everyday. My baby, Hutton has Heart defects and has been on a vent until recently. I hung one of the crosses you made right by her door reminding me to hang in there and BELIEVE. I think of Jake everytime I am entering he room. You are a good Mama and inspire me!

Emily said...

Still missing that Jake.....always will.....thank you for sharing....it's always nice to sit and remember his sillyness.

snekcip said...

Oh how we ALL miss that Sweet Boy!! How wonderful it is to see Jake's sweet face!!! Those pictures bring back so many memories!! Jake always had that wonderful spirit about himself!! No matter what he was going through, he always had that beautiful smile!! PLEASE KEEP THE PICTURES COMING!! There is nothing better than a JAKE UPDATE! I know you have been told this MILLIONS of TIMES...but thank you so much for sharing that SWEET BABY with us! JAKE WE LOVE YOU AND MISS YOU SO VERY MUCH!!!

Jeni said...

I am smiling while looking at Jake's pictures. What a little trooper he was. The kids who are sick appreciate so much more in life. I pray every night they find a cure for Cancer. Thanks for sharing Jake with us.

Cathy said...

Awe, Staci, that picture was the day I met Jake. Who knew how much all of you would touch my life. What a sweet little angel you have! I thought of him this weekend. I went to a funeral at his cemetery and walked over the hill to say "hello."

Thank you for sharing. I love to look at and remember "Baby Jake."

Stacey said...

What a treat to see pictures of Jake. I have been a lurker for soo long. Hope all is well!

We are buried under 12 inches of new snow in Fargo today.

Pepper said...

Love, Love this post. I miss seeing that sweet smile too. Thank you for sharing them with me. I know sometimes it is painful and joyful all at the same time.

Michelle said...

I love seeing pictures of Jake. Such a precious little face.


Tell Mel that for some reason when I went to read her blog today it said invited readers only. I am not sure how to overcome that little problem. I have been reading since she started the blog with no problems. Thanks for your help.

Christie said...

Precious Jake, what a sweet smile he has. Mo talked about you being a terrorist at the walk..lmaoooo. By the way I saw she has a private blog now. I am soooo disappointed. How can I get invited to it? I would be miserable if I couldn't follow ya'll.

debbie.etie said...

It was such a blessing to see that smiling face! What a sweet boy! Thanks for sharing!

Susan said...

Stacy:
I love, love, love seeing pics of Jake! Thanks for sharing them with us...
I tried to read Mel's blog and she's gone private! How can I get invited?
Susan

rjpotter said...

I have loved following Jakes website and I also follow your blog. I am excited that I can still follow yours because I have been LOCKED out of Mo's. I would love to be invited to share her blog too if you can pass that on... I would appreciate it. You have beautiful children and I love following both of your blogs!! You guys make me laugh.

Veronica said...

Thank you for sharing Jake's pictures I just love his big blue eyes. I followed his website, and started following both yours and Mo's blogs I just love reading them both.........I too have been locked out of Mo's blog I want to be invited in to.

peg said...

Hi Stacy and Family! Thank-you for the pic's of Jake, I miss seeing his sweet face, I followed your carinbridge page for quite a few years, then Mo made her blog and I started following that, now today I also am locked out and I'm havin sweet baby picture with drawl! So I came straight to your blog-Made it doubly great to see Jake and cute Maddi! cn you ask Mo to invite me in??

tricia said...

stopped by again to "revisit" with sweet Jake". ...what special young boy!.

Diana said...

Hi ~ I am also locked out of Mo's blog...can you please let me in? I have been a follower of yours since Jake was sick, I just never signed in, but did pray for Jake and all of you. I enjoy reading/seeing your family and Mo's. It was beautiful to see Jake again - what a sweet boy he was/is. Take care of yourself, Diana

cphoo said...

Hi, Staci,
What a beautiful family you and Mo have!! I'm a shy follower for a very long time. Please add me to the list of those who would like to follow you and Mo. I have two older boys and love following the adventures of all of your precious girls.

jmkaay said...

I too have followed your family for years, and feel so close to your sweet little angel.

I hope nothing happened to Mo's blog. I love her baby pics and funny stories. Tell her I miss her.

Jan

Denise said...

Staci...
I'm just going off to bed & I thought I'd give it one more shot at your blog... how nice to be able to see y'all again and be able to see, "Goodnight, don't let the bedbugs bite."
Praying & believing.

Michele said...

Thank you Staci!! What a sweet boy!!!

ncoleman said...

What a joy to see that precious face as I am catching up on my blogs today. People can be cruel. I am sorry you have to block you blog because of the ignorance of others. God Bless the Raborns!

Stephanie said...

Thanks for posting the Jake pictures! It's funny that you posted these because I talk about Jake with my husband every now and then and he'll ask, "is that the cute boy with the rebel flag pillow"? Love it and ya'll!

Nana said...

Oh Staci...
Tell us what all you bought at Spring Market???? Bet Maddiboo has lots of new things....
Cleaned out a drawer today and found...guess what...a bag of Jake's M&M's....had to shed a few tears for that little sweetheart.
Y'all need to come to Schlitterbaum, Sea World, etc this summer and show the boys there are things to do...unlike when you came and school was going on and there was nothing open...
See ya..JJ